Nevus Support Australia

About Nevus Support

Nevus Support Australia Inc. is a registered Not for Profit, tax deductible charity supporting individuals and families affected by Congenital Melanocytic Naevus.
Nevus Support Australia Inc is run entirely by volunteers. No staff member is paid and all profits go to supporting our members. ABN: 23543860400.

In November 2001 our daughter Danielle was born with a birthmark condition called Congenital Melanocytic Naevus.

We thought we were the only ones dealing with this condition. We were afraid and felt very alone, we wanted to know how to help her with this condition. There was no support group available in Australia. What we needed most was to talk to other families who had been in the same position that we now found ourselves.

Not content to give up we continued searching for answers and with the help of an American support group Nevus Outreach and a social worker from the Adelaide Women's and Children's Hospital we eventually made contact with several families in Australia who also had children with this condition. As we spoke to the families we had made contact with it became apparent that everyone had had similar experiences of isolation and a desire to connect with other families.

In 2002 the concept of Nevus Support Australia blossomed and by January 2004 we were holding our first National conference in Adelaide and released our first print brochure about the condition and our group to doctors offices and major hospital all around the country.

What we are doing ....

Today Nevus Support Australia Inc. is a registered Not for Profit, tax deductible charity. We have a membership of over 100 families which is growing weekly and incorporates New Zealand and southern Asia.

We are working collaboratively with support groups and researchers around the world and holding regular bi annual conferences so that our very special families can meet each other and share in their journeys.

We produce regular newsletters and of course run this website. New families are now referred to us by medical professionals or locate us via this website and our hope is that no one ever feels totally alone with this condition again..

Medical Research

Scientific research commissioned by Nevus Outreach indicates we can interrupt the reproduction of melanocytes, we are sitting on research that has the potential to help a great number of patients with melanocyte related conditions.

Research is considerably costly and for the medical world to find a cure we need financial support. Please also register with us to further understand and research this condition.

Can you help

As a registered Not for Profit, tax deductible charity we need funds to maintain our services and to support research into pigmented skin conditions and associated conditions including melanoma, NCM and hydrocephaly.

We also need donations of goods in kind to provide practical and moral support to our families.

IIf you are in a position to offer financial support or are able to offer things like .....